https://scholars.lib.ntu.edu.tw/handle/123456789/525271
DC 欄位 | 值 | 語言 |
---|---|---|
dc.contributor.author | Chiang Y.-T. | en_US |
dc.contributor.author | Chen C.-W. | en_US |
dc.contributor.author | Su W.-J. | en_US |
dc.contributor.author | JOU-KOU WANG | en_US |
dc.contributor.author | CHUN-WEI LU | en_US |
dc.contributor.author | Li Y.-F. | en_US |
dc.contributor.author | Moons P. | en_US |
dc.creator | Chiang Y.-T.;Chen C.-W.;Su W.-J.;Wang J.-K.;Chun-Wei Lu;Li Y.-F.;Moons P. | - |
dc.date.accessioned | 2020-12-09T09:01:09Z | - |
dc.date.available | 2020-12-09T09:01:09Z | - |
dc.date.issued | 2015 | - |
dc.identifier.issn | 0309-2402 | - |
dc.identifier.uri | https://www.scopus.com/inward/record.uri?eid=2-s2.0-84922908917&doi=10.1111%2fjan.12546&partnerID=40&md5=5602dfd564e4bbdf268e79b519dceeac | - |
dc.identifier.uri | https://scholars.lib.ntu.edu.tw/handle/123456789/525271 | - |
dc.description.abstract | Aim: To describe the life experiences of adolescents and young adults with congenital heart disease. Background: Owing to medical advances, most children with congenital heart disease are expected to survive into adulthood. The transitional development from adolescence to adult is the critical period for fostering self-care. Design: Descriptive phenomenological study. Methods: Thirty-five patients of 15-24 years old with congenital heart disease were recruited from paediatric cardiology clinics by purposive sampling. They were individually interviewed between October 2012-February 2013 using a semi-structured interview guideline and joined adult congenital heart disease clinics at two medical centres in northern Taiwan. The data were analysed using descriptive phenomenological method developed by Giorgi. Findings: The essence of the life experience of adolescents and young adults with congenital heart disease involves a dynamic process of moving between invisible defects and coexistence with the disease. Six themes emerged: (1) invisible defects: the existence of imperfect understanding; (2) conflict: interpersonal frustrations; (3) imbalance: the loss of self-balance; (4) suffering: increasing anxiety; (5) encounters: meeting needs; and (6) coexistence: positive coping strategies. Conclusion: As patients with congenital heart disease transition from adolescence into adulthood, they must learn about their disease, overcome frustration and anxiety and develop self-care strategies for coexisting with congenital heart disease. Results of this study may serve as clinical care guidelines for adolescents and young adults with congenital heart disease and give a reference for developing transitional intervention strategies. ? 2014 John Wiley & Sons Ltd. | - |
dc.publisher | Blackwell Publishing Ltd | - |
dc.relation.ispartof | Journal of Advanced Nursing | - |
dc.subject.classification | [SDGs]SDG3 | - |
dc.subject.other | adaptive behavior; adolescent; anxiety; comprehension; conflict; congenital heart malformation; female; health care delivery; human; human relation; life event; male; nursing; psychology; self care; self concept; transition to adult care; young adult; Adaptation, Psychological; Adolescent; Anxiety; Comprehension; Conflict (Psychology); Female; Health Services Accessibility; Heart Defects, Congenital; Humans; Interpersonal Relations; Life Change Events; Male; Self Care; Self Concept; Transition to Adult Care; Young Adult | - |
dc.title | Between invisible defects and visible impact: The life experiences of adolescents and young adults with congenital heart disease | en_US |
dc.type | journal article | en |
dc.identifier.doi | 10.1111/jan.12546 | - |
dc.identifier.pmid | 25296699 | - |
dc.identifier.scopus | 2-s2.0-84922908917 | - |
dc.relation.pages | 599-608 | - |
dc.relation.journalvolume | 71 | - |
dc.relation.journalissue | 3 | - |
item.fulltext | no fulltext | - |
item.openairetype | journal article | - |
item.openairecristype | http://purl.org/coar/resource_type/c_6501 | - |
item.grantfulltext | none | - |
item.cerifentitytype | Publications | - |
crisitem.author.dept | Pediatrics-NTUH | - |
crisitem.author.dept | Pediatrics | - |
crisitem.author.dept | Pediatrics-NTUH | - |
crisitem.author.orcid | 0000-0002-3043-3873 | - |
crisitem.author.orcid | 0000-0002-6872-4764 | - |
crisitem.author.parentorg | National Taiwan University Hospital | - |
crisitem.author.parentorg | College of Medicine | - |
crisitem.author.parentorg | National Taiwan University Hospital | - |
顯示於: | 醫學系 |
在 IR 系統中的文件,除了特別指名其著作權條款之外,均受到著作權保護,並且保留所有的權利。