Psychometric properties of a Chinese version of the Cerebral Palsy Quality of Life Questionnaire-for Adolescents (CPQOL-Teen) in teenagers with cerebral palsy in Taiwan
Date Issued
2016
Date
2016
Author(s)
Chang, Shao-Ju
Abstract
Purpose: Health-related quality of life (HRQoL) has been attracting attention of clinicians working with children with the adolescents with Cerebral Palsy (CP). It is of great importance to provide clinicians a well-developed measurement for assessing the HRQoL of the adolescents with CP..The present study is aimed to cross culturally translate the Cerebral Palsy Quality of Life questionnaire-for adolescents (CPQOL-Teen) into Mandarin Chinese and evaluate its psychometric properties when used in Taiwanese Adolescents with CP. Methods: The study was conducted in two phases. In Phases one, four steps were followed, i.e, 1) forward translation of the CPQOL-Teen according to guidelines developed by Beton, Bombardier, Guilemin, and Feraz (2000) for cross-cultural adaptation of instruments by a committee, 2) expert evaluation of the translation, 3) blind back-translation, and 4) pilot testing and cognitive interviewing. In Phase II, the evaluation of the psychometric properties of the Chinese version of the CPQOL-Teen was conducted. The Chinese version of the CPQOL-Teen was administered to 113 adolescents with CP along with 58 primary caregivers from a medical center, a special school for children and adolescents with CP, senior and junior high schools in Greater Taipei area and long-term care facilities in Taiwan. Internal consistency was examined by using Cronbach alpha, item- subscale correlations by Pearson correlation, test-retest reliability by intraclass correlation (ICC). In addition, content validity was investigated by expert validation, construct validity by both confirmatory and exploratory factor analyses. Criterion-related validity were evaluated by the correlation of the CP-QOL Teen with the WHOQOL BREF Taiwan version using ICC. Agreement between the adolescents with their primary caregivers was also investigated by ICC.. Results: A total of 113 adolescents with CP aged thirteen to eighteen years (mean age = 15.6 years, SD = 1.54, 75 males, 38 females) along with fifty-eight primary caregivers (7 fathers, 45 mothers, 1 grandparent, 5 other caregivers) completed the Chinese version CPQOL-Teen questionnaire. The Chinese version of the CPQOL-Teen demonstrated acceptable to good internal consistency (Cronbach’s αs= 0.83 -0.92: adolescent self- report version; Cronbach’s αs = 0.76- 0.92: primary caregiver version), moderate to good test-retest reliability for adolescent self-report (ICCs= 0.49- 0.96), and poor to good test-retest reliability for primary caregiver version (ICCs= 0.27 - 0.92). Most correlations (Self report: General wellbeing and participation: 0.42-0.77, Communication and physical health: 0.43-0.77, School wellbeing: 0.62-0.80, Social wellbeing: 0.54-0.83, Feeling with functioning: 0.70- 0.83; Primary caregiver report: General wellbeing and participation: 0.52-0.80, Communication and physical health: 0.50-0.75, School wellbeing: 0.68-0.86, Social wellbeing: 0.64-0.82, Feeling with functioning: 0.55- 0.84, Access to service: 0.20-0.89, Family health: 0.84-0.93) were higher between items and subscales of the original English version than those with other subscales. Exploratory factor analysis of the Chinese version CPQOL-Teen resulted in a two- factors pattern. Concurrent validity with the WHOQOL-BREF Taiwan version showed poor to moderate (0.232-0.640) subscales correlations. Agreement between the adolescents and primary caregivers was moderate (0.53-0.70). Conclusions: Results of the study suggest that the Chinese version CPQOL-Teen is c a reliable and valid instrument for evaluating adolescents with CP’s HRQoL in Taiwan. Agreement between adolescents with CP and their primary caregiver showed moderate correlation.
Subjects
cerebral palsy
adolescent
HRQoL
self-report
pediatric occupational therapy
Type
thesis
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