"Sweet Burden"？Family Future Care Transition for Aging People with Intellectual Disabilities.
Date Issued
2008
Date
2008
Author(s)
Chang, Ting-Wei
Abstract
It is a common social phenomenon that families take care of family members with intellectual disability. In this aging society, life expectancy of people with ID became lengthen. That leads to a longer timeframe for caregivers to take care of them. There comes a special family condition that elderly parents take care of their aging intellectual disabled children. These elderly parents, however, will not be able to take care of them some day. Therefore, the family have to consider care transition for members with ID. n this study, researcher will explore these families’ attitude and concern toward care transition. The primary research goals are: (1) to delineate the long-term care process of families with aging members with ID. (2) to understand the internal process for families in the discussion of care transition for aging members with ID. (3) to show the influence of formal and informal resources on families with aging members with ID. (4) to offer suggestions for families according to the findings mentioned above. Qualitative research approach was employed in the study. Deep interviews with ten families had started between July to September 2007. Information how family worked together to arrange future care for individuals with ID was collected. In terms of life course, data were categorized as “the past”, “the present” and “the future.”he results indicated that aging people with ID born in 1940s has cohort different. Not each of them exactly experienced integrated diverse care transitions. Some were stayed at home most of their life, and even haven’t left family to receive any formal education or vocational training. With the research experience of long-term care, researcher found the caring energy in the family have become lower and lower when elderly parent’s aging. It is especially notable in families of old single mother. Their life quality was strongly affected by factors as low socio-economic status and aging. Although these old parents wish to alleviate caring burdens, they refused to accept help from social service agency due to distrust and unfamiliarity. This resulted in crisis not only for the family but also the whole social service system. Regarding ways of arranging future placement for members with ID, researcher categorized mainly five types from results. Each type showed different coping styles. Some families choose passive resistance to get rid of the painful and sorrowful arrangement, others begin the discussion with others family members, use out of home placement, or financial plan. Last, according to the result, researcher indicated some suggestion to government about social welfare policy.
Subjects
aging people with intellectual disabilities
family care
elderly parents
care transition
future care plan
SDGs
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