The Influence of Parents’ Illness Knowledge on Quality of Life of Child with Epilepsy
Date Issued
2009
Date
2009
Author(s)
Chen, Hsiu-Jung
Abstract
Background and purpose: This quantitative study is to investigate the factors influencing quality of life of children with epilepsy, and to validate the relationships between parents’ knowledge of epilepsy, attitude, social support, parental response to child illness and quality of life of children with epilepsy. ethods: Researcher enrolled children with epilepsy and their parents at pediatric clinics of four hospitals in Taipei and Taichung. Data collected by structured questionnaires, including the demographic data of children and their parents, epileptic knowledge scale, epileptic attitude scale, social support scale, Parent response to child illness scale and Quality of life in childhood epilepsy. Multiple regression analysis was used to test for control variables and mediated relationships. onclusions: 188 children with epilepsy and their parents were interviewed. Parents had good knowledge about epilepsy, and their attitudes were positive toward epilepsy. But parents are short of social supports, especial information of parenting their children with epilepsy. Children with epilepsy response good quality of life, and feel low social stigma. Children with good school performance and seizure control show better quality of life than those who have worse school performance and poor seizure control. The clinic nurses should offer more information to the parents with epileptic children, and take good care of the epileptic children with poor seizure control to improve their quality of life.
Subjects
children with epilepsy
parents
knowledge
attitude
social support
parent response to child illness
quality of life of children
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