Dilemmas across different overseas liver transplant stages: Taiwan transplant recipient families' perspectives
Journal
Transplantation Proceedings
Journal Volume
44
Journal Issue
2
Pages
539-543
Date Issued
2012
Author(s)
Abstract
Aims: This study aimed to explore the dilemmas of Taiwanese overseas liver transplant recipient families (OLTRF) across three overseas liver transplant (OLT) stages in Taiwan and Mainland China. Patients and methods: An exploratory qualitative method was employed using a purposive sample of OLTRF, who received guided face-to-face, semistructured interviews. Data were subjected to content analysis. Results: Nineteen OLTRF (15 female, 4 male) aged between 29 and 71 years (mean 55.1) for 19 patients with end-stage liver diseases were interviewed. OLT stages including predeparture stage (first stage), stay in China stage (second stage), and reentry to Taiwan stage (third stage). Ten kinds of dilemmas were encountered: (1) unable to get transplantation immediately (first to second stages); (2) dilemma of choosing overseas transplantation (first to second stages); (3) uncertainty about the transplantation outcomes (second to third stages); (4) care pressure (second to third stages); (5) poor diet adaptation (second to third stages); (6) lack of trust in the medical care quality (second stage); (7) worry about not fulfilling family responsibilities (second stage); (8) lack of information (all stages); (9) financial pressure (all stages); and (10) frustration when seeking medical care (all stages). Conclusions: Taiwanese OLTRF's perspectives of their dilemmas through the OLT process were first revealed in this study. Both Western and Eastern health professionals might be empowered by better understanding of OLTRF's living experiences and concerns during the stages of overseas liver transplantation. ? 2012 by Elsevier Inc. All rights reserved.
Other Subjects
adult; aged; article; caregiver support; China; clinical article; diet; end stage liver disease; family functioning; family stress; female; financial management; graft recipient; health care cost; health care quality; help seeking behavior; human; liver transplantation; male; overseas liver transplant recipient family; priority journal; semi structured interview; social status; Taiwan; trust; Access to Information; Adult; Aged; Caregivers; China; Cost of Illness; Cultural Characteristics; End Stage Liver Disease; Family; Female; Health Care Costs; Health Policy; Health Services Accessibility; Humans; Interviews as Topic; Liver Transplantation; Male; Medical Tourism; Middle Aged; Perception; Qualitative Research; Quality of Health Care; Severity of Illness Index; Taiwan; Trust; Uncertainty
Type
journal article