Comparing the Concerns and Coping Strategies of Adolescents with Osteogenesis Imperfecta to Their Caregivers
Date Issued
2006
Date
2006
Author(s)
Wang, Hsueh-Feng
DOI
zh-TW
Abstract
The purpose of this study is the concern caregivers issue with regards to strategies and coping with adolescents who have Osteogenesis Imperfecta.
The designed study was a descriptive qualitative approach. There was an in-depth interview with the 10 caregivers and 6 adolescents by a semi-structured interviews guide and the interview contents were systematically analyzed using content analysis.
The results of the study through caregivers and adolescents have same concerns in medical treatment with "fracture repairs","medical viewpoints","diagnosing characteristics","physical activities"and"heredity". With respect to care and future outlook issues listed included: "daily care"and"future profession". Personal interactions were divided up into "discrimination","interactions with teachers"and"interactions with families". Then they have different concerns in medical treatment with "surgical operation". With respect to care and future outlook issues listed included: "marriage and raising","enterig classes at schools","conditions of entering schools","fractures conditions","outside activities"and"situations of learning at schools". Personal interactions were divided up into "interactions with classmates","interactions with medical staffs","interactions with others","school resources","social associated resources","enviromental resources","governmental resources"and"economic spending". Furthermore, the coping strategy for the major caregivers and adolescents were the cognitive operation, the emotion response. and the problem solving.
The finding of this research can be a care-guide book to help nursing staff understand this disease, provide relevant information, support caregivers and adolescent with Osteogenesis Imperfecta.
Subjects
成骨不全症
主要照顧者
青少年
關注
因應策略
Osteogenesis Imperfecta
caregiver
adolescent
concer
coping strategy
Type
other
File(s)![Thumbnail Image]()
Loading...
Name
ntu-95-R92426006-1.pdf
Size
23.31 KB
Format
Adobe PDF
Checksum
(MD5):ab7ecc557833e00567b8a8d812ca940c