Psychological Adaptation and Decisional Conflict in Late-onset Hereditary Neurodegenerative Disease Family
Date Issued
2009
Date
2009
Author(s)
Lin, Shu-Yu
Abstract
To patients or their families with late-onset hereditary neurodegenerative disease, it is a difficulty course for genetic counseling, because of its incurable and no effective prevention. Previous studies have been focused on ethical of asymptom genetic test or emotional concerns. However, recent studies take more and more psychological impact of patients and their families seriously. he propose of this study was to analyze and investigate the psychological adaptation and decisional conflict of medical treatment in late-onset hereditary neurodegenerative disease family, and the correlation between client’s demographic data, and characteristic of the disease. The participants were recruited for this cross-sectional and correlational study, from a neurological department at a medical center in northern Taiwan, using purposive sampling. With informed consent, data were collected with structured questionnaires including demographic data, characteristic of the disease, psychological adaptation of genetic information scale, and decisional conflict scale. Data was analyzed using SPSS/Window 15.0.he result of this study indicated the correlation between psychological adaption and decisional conflict in late-onset hereditary neurodegenerative disease family. It is imperative to provide a quality genetic counseling or support to late-onset heredity neurodegenerative disease family, and to help client make necessary decisions and better adaptation.
Subjects
late-onset heredity neurodegenerative disease
psychological adaptation
decisional conflict.
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ntu-98-P96448007-1.pdf
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