Sense of coherence in adults with congenital heart disease in 15 countries: Patient characteristics, cultural dimensions and quality of life
Journal
European Journal of Cardiovascular Nursing
Date Issued
2020
Author(s)
Moons P.
Apers S.
Kovacs A.H.
Thomet C.
Budts W.
Enomoto J.
Sluman M.A.
Jackson J.L.
Khairy P.
Cook S.C.
Chidambarathanu S.
Alday L.
Oechslin E.
Eriksen K.
Dellborg M.
Berghammer M.
Johansson B.
Mackie A.S.
Menahem S.
Caruana M.
Veldtman G.
Soufi A.
Fernandes S.M.
White K.
Callus E.
Kutty S.
Luyckx K.
on behalf of the APPROACH-IS consortium
the International Society for Adult Congenital Heart Disease (ISACHD)
Abstract
Background: Previous studies have found that sense of coherence (SOC) is positively related to quality of life (QoL) in persons with chronic conditions. In congenital heart disease (CHD), the evidence is scant. Aims: We investigated (i) intercountry variation in SOC in a large international sample of adults with CHD; (ii) the relationship between demographic and clinical characteristics and SOC; (iii) the relationship between cultural dimensions of countries and SOC; and (iv) variation in relative importance of SOC in explaining QoL across the countries. Methods: APPROACH-IS was a cross-sectional, observational study, with 4028 patients from 15 countries enrolled. SOC was measured using the 13-item SOC scale (range 13-91) and QoL was assessed by a linear analog scale (range 0-100). Results: The mean SOC score was 65.5±13.2. Large intercountry variation was observed with the strongest SOC in Switzerland (68.8±11.1) and the lowest SOC in Japan (59.9±14.5). A lower SOC was associated with a younger age; lower educational level; with job seeking, being unemployed or disabled; unmarried, divorced or widowed; from a worse functional class; and simple CHD. Power distance index and individualism vs collectivism were cultural dimensions significantly related to SOC. SOC was positively associated with QoL in all participating countries and in the total sample, with an explained variance ranging from 5.8% in Argentina to 30.4% in Japan. Conclusion: In adults with CHD, SOC is positively associated with QoL. The implementation of SOC-enhancing interventions might improve QoL, but strategies would likely differ across countries given the substantial variation in explained variance. ? 2020 Published on behalf of the European Society of Cardiology. All rights reserved.
Subjects
congenital; Heart defects; nursing; positive psychology; quality of life; resilience; salutogenesis; sense of coherence
SDGs
Other Subjects
adult; Argentina; Article; congenital heart disease; cross-sectional study; demography; divorced person; female; femininity; health care system; heart transplantation; human; hypertension; life satisfaction; major clinical study; male; masculinity; observational study; positive psychology; quality of life; questionnaire; scoring system; unemployment; widowed person; congenital heart malformation; cultural factor; quality of life; sense of coherence; Adult; Cross-Sectional Studies; Cultural Characteristics; Heart Defects, Congenital; Humans; Quality of Life; Sense of Coherence
Publisher
SAGE Publications Inc.
Type
journal article