Resilience of the Rainbow Bridge—The Illness Experience and Treatment Process of Families with a Neuroblastoma Child
Date Issued
2009
Date
2009
Author(s)
Chen, Tzu-Chun
Abstract
Neuroblastoma is the most common solid tumor of infancy and the second most common extracranial malignant tumor of childhood, and its five-year overall survival rate in high-risk group approximated about 30%. The purpose of this qualitative study was to explore the illness experience and treatment process of a family with a high-risk group neuroblastoma child. A purposive sample of eight caregivers was selected to the main objective by the methods of in-depth interviews and participate-observation. Using the Giorgi (1997) phenomenological analysis method, data were analyzed and integrated to seven themes. The results of this study show that the family experiences of children undergoing treatment to class with two parts including time processes and resources. The former includes that the shockness reaction and the impact experience when the illness break out in the first stage, the uncertainty of the characterization of this disease, the experiences of the treatments course and study process, and the responses after the courses of treatments, and the later includes that the supports from family cohesion and family resilience, the assistances and expectations from health care team, and the needs and expectations from the social resource. There are ten resilience factors derived from the discussion of the results that included courage、family adjustment、learning、positive outlook、spirituality、compare、family communication、support systems、family expectance and family member accord. The results show that family resilience exists in every family, that is, every family can overcome all of the adversity and cross it hardly. Owing to the fact that the integrated treatment and the Health-Care Team are in the developing stage in Taiwan, the results of the study can promotes health professionals implement appropriate interventions as well as providers a working outline for social workers. In addition, these may be not only referenced in the guide of family center care but also helped the development of the family resilience, which can help the family to cross the whole treatment processes.
Subjects
qualitative research
neuroblastoma
health care team
family resilience.
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