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  4. Using Representational Approach Based Education to Improve self-Care Ability of Patients with Systemic Lupus Erythematosus
 
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Using Representational Approach Based Education to Improve self-Care Ability of Patients with Systemic Lupus Erythematosus

Date Issued
2014
Date
2014
Author(s)
Lin, Wei-Shan
URI
http://ntur.lib.ntu.edu.tw//handle/246246/264539
Abstract
BACKGROUND: The Systemic Lupus Erythematosus (SLE) is an incurable chronic disease. The SLE influences many organs of the patient and causes a lot of symptoms, including pain, fatigue, sleeping problems, anxiety, and depression. Therefore, the patient must possess the self-care ability to maintain a good quality of life. OBJECTIVES: This study explored patients’ representation of SLE and the performance of the representational approach based education program on the self-care ability of patients with SLE METHODS: This study was a clinical randomized control trial and the participants were recruited from the Rheumatology clinic for at least six months in a medical center in Taiwan. The patients are randomly assigned into an experimental group (n=37) and a control group (n=35) after stratifying according to the Systemic Lupus Erythematosus Disease Activity Index (SLEDAI). The illness perception, the symptom stress, the quality of life, and the illness self-efficacy of the patients were evaluated with a set of questionnaires. In the experimental group, the patients were educated according to the representational approach based education program with the education brochure drafted by the researchers. Moreover, the patients in the experimental group were respectively provided with a four-week personalized education according to the symptom stress of each patient once. On the other side, the patients in the control group were provided with the usual education sheet. The patients have followed up after one, and three months to compare the symptom distress, self-care efficacy, and quality of life between the two groups. The descriptive statistics, the t-test and the generalized estimating equation (GEE) are utilized to analyze the collected data. RESULTS: The analyses showed the symptom distress of the patients mostly came from the tiredness, the memory impairment and distraction. The analyses based on the GEE showed a prominent improvement (p=.04) may be found on the patients educated according to the representational approach based education program. The self-efficacy of symptom management and the quality of life, however, do not have a notable improvement. Moreover, the patients living with family have a better self-efficacy of symptom management than those living alone. CONCLUSIONS: Compared with the conventional education program, the representational approach based education program may have a better improvement on the symptom distress of the patients, but does not have a notable improvement on the self-efficacy of symptom management and the quality of life. During the education process, a friendly therapeutic relationship may improve the performance of the representational approach based education program, especially for the patients with less support from relatives and friends. The study and the drafted education brochure may provide a better reference for the clinical nursing staff performing the education program.
Subjects
全身性紅斑狼瘡
詮釋取向衛教
症狀困擾
自我照顧
Type
thesis
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ntu-103-R95426015-1.pdf

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