An Exploration of Parents' Considerations for Schooling of Children with Cancer and Relevant Factors

Abstract

本研究旨在探討癌症兒童父母親，在面臨病童就學時會有的考慮及相關因素.研究採 橫斷式調查法，選取「中華民國兒童癌症基金會」106 位病童之家長，進行問卷及電 話追蹤訪談.調查資料採因素分析、描 述性統計、皮爾森基差相關與變異數分析進行 分析解釋.重要結果發 現：(1)父母對癌症病童就學有四項考慮因素，包括：「學校 可運用的 資源」、「孩子可獲得的關照」、「孩子的體力恢復情況」、及「孩 子的 就近性照顧」，其中以「孩子的體力恢復情況」是最重要的考慮；(2)患孩的年齡和 父母的考慮因素成負相關，其中小於6歲的患童父母顯著地較13歲以上的患童父母有 較多考慮情形；(3)患孩的患病期間和父母的考慮情形成負相關；其中患病期間少於1 年者的父母較10年以上的父母顯著地有較多考慮情形；(4)父母親的年齡顯著地和所 考慮的「學校可運用資源」成負相關，母親年齡及職業，和父母考慮孩子的就近性照 護有顯著差異.期待本研究初步結果能增強醫院、家庭及學校間的轉介聯絡網、推動 弱病學童教育體制之建立及增強學校護理人員有關癌症兒童照護訓練等三方面提出參 考建議.；This study aimed to understand parents’ considerations for schooling of children with cancer and relevant factors. The research design employed a cross-sectional survey approach. The parents of 106 children recruited from the registry of the Childhood Cancer Foundation of the Republic of China, were investigated by questionnaire and telephone follow-up. Data was processed by factor analysis, descriptive statistics, product-moment correlation, and one- way ANOVA. Results showed that: (1) Four dimensions of parents’ consideration were: available resources at school, acquirable attention to child, physical recovery status of child, and accessible caring of child, Physical recovery status was the first leading factor of consideration. (2) Negative correlation between child’s age and parents consideration; parents, with children aged less than 6 significantly had more consideration than those with children aged more than 13. (3) Negative correlation between duration of illness and considerations; parents whose child’s duration of illness was less than I year, significantly had more consideration than where if was mare than 10 years. (4) Negative correlation between parents’ age and available resources at school; Mother’s age and occupation revealed significantly different in accessible caring of child. It is hoped that such preliminary study findings will be valuable references to promote the hospital-family - school referral system, special education programs for vulnerable schoolers, and in-service education programs for school nurses.