|Title:||Explore to Perspectives of Advance Care Planning of End-of-Disease in Patients with Hemodialysis: From View of Hospice Palliative Care
HO, CHANG- I
|Keywords:||安?緩和?護;病情告知;預?醫 hemodialysis;hospice palliative care;truth telling;advance care planning||Issue Date:||2010||Start page/Pages:||269-289||Source:||Abstract:||
The developing dialysis technology has prolonged survival of patients with end-stage renal disease. However, they who face much suffering from physical, psychological, social, and spiritual impacts, so that trend to a negative quality- of-life, and the terror to death. It is very important to do "the following advance care planning". The purpose of the present study is to explore the current opinion of patients with hemodialysis related to advance care planning. The semi -structured guideline is used to the interview survey. 68 subjects were enrolled in the quantitative research. Then, 14 heterogeneous subjects participated in a focus group for a deeply interview in the qualitative research. The main results of this study are followed, 1) 42.6% of 68 subjects considered that quality- of-life is more important than prolonging survival. 60.3% agreed with the telling-truth. 36 .8% had the intention of continual dialysis. 63.2% included that consider not to dialysis, uncertainty, and no thinking about option or how to answer. 10.3% did the completing earlier preparation on both psychological status and action. 2) Content analysis method was used to analyze the collected data in a focus group. The major findings were 7 themes emerged, as follows: adjustment for dilemma from weakness to strength, maintaining life within the existence of illness, emphasizing on health protection and cherishing life, preferences to the effect of telling-truth in the end- stage of disease, evaluating risks and patients' endurance, making decisions of treatment for ongoing the life struggle , and approving of advance care planning. It is hoped to provide valuable references for promotion of hospice palliative care toward hemodialysis patients with end-stage renal disease, and for enhancing the care quality of end-of- life.
|Appears in Collections:||護理學系所|
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