https://scholars.lib.ntu.edu.tw/handle/123456789/195569
Title: | Beta-Thalassemia Major Births after National Screening Program in Taiwan | Authors: | CHERN, JIMMY PENG-SHENG LIN, KAI-HSIN LU, MENG-YAO LIN, DONG-TSAMN JOU, SHIANN-TARNG YANG, YOUN-LI CHANG, HSIU-HAO SU, SYI LIN, KUO-SIN |
Keywords: | beta-thalassemia major;health education;interracial marriage;screening | Issue Date: | 2008 | Journal Volume: | v.50 | Journal Issue: | n.1 | Start page/Pages: | 58-61 | Source: | PEDIATRIC BLOOD & CANCER | Abstract: | Objective. A National Thalassemia Screening Program was adopted in Taiwan in 1993. This report examined that program 's results and impact. Methods . Patients with beta- thalassemia major born between 1994 and 2003 were recruited through the help of all thalassemia clinics in Taiwan. A structured questionnaire was designed to collect the reasons for affected births. Results. There were 97 affected births from 1994 to 2003. These births resulted after informed choice (n = 4), screening problems (n = 83) , and undetermined causes (n = 10). Approximately 83% (5/6) of affected births in 2003 came from interracial marriages. Conclusions. This report has identified several areas that might improve the thalassemia-screening program, including carrier screening in high school rather than in early pregnancy and the involvement of genetic counselors, providing care of new female immigrants. |
URI: | http://ntur.lib.ntu.edu.tw//handle/246246/186748 |
Appears in Collections: | 醫學系 |
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