行政院國家科學委員會專題研究計畫期中進度報告:失智症居家照顧病人家屬支持的介入模式研究(1/2)

Abstract

台灣失智症患者醫療照護及居家照顧家屬支持系統大致已具有雛形, 近 年來雖然也陸續有些針對失智症家屬的各種不同性質的醫療服務的推展，但至 今仍缺乏嚴謹的研究來評估這些服務的成效. 因此，要發展本土的、實用的介 入處置模式，以減少失智症居家照顧家屬的照顧負荷與心理社會壓力、改善生 活品質，實為失智症醫療與長期照顧的當務之急。本研究計劃的目的為評估何 種介入性治療模式更能協助失智症家屬，減輕照顧家屬的負荷、改善其心理社 會健康與生活品質，從而有效地改善照顧品質。針對門診中的不同程度失智症 居家照顧的患者與照顧家屬，提出二種不同的介入性治療模式(包括記憶門診 及照顧家屬的教育支持性團體)，與控制組的一般門診治療比較，評估不同治 療模式的可行性及治療成效。 本報告為期中進度報告，接受由神經內科醫師轉介符合條件之失智患者與 照顧者，共有57 組，其中52 組完成治療前基準評估，而52 位照顧者個案中， 3 位退出，7 位完成，42 位持續進行中（目前有效樣本為49 組），已完成之8 位個案完成第一次後測並持續接受追蹤。

In Taiwan, the delivery of medical treatment and long-term care to the dememtic patients and their caregivers has recently been implemented. Unfortunately, the integration, completeness and effectiveness of those programs and systems are far from satisfactory. Moreover, effective local interventional programs for the caregivers are not yet studied before in Taiwan. The purposes of this research are to evaluate what kind of interventional modalities could help the caregivers to reduce their stress and burden and to improve their quality of life, which in turn can improve the quality of care. This is a randomized controlled design to compare the effectiveness of two different outpatient interventional modalities, i.e. (Ⅰ) memory clinic and (Ⅱ) family member care training course to usual clinic visits patients and caregivers. This is a mid-term report of the study. Up to now, we have recruited 52 patients and their corresponding caregivers. They were randomized into 3 groups and interventions were given for a period of 3 months. Seven of them completed intervention, 42 of them still receiving intervention and 3 of them withdrawn from the study.