|Title:||Data Accessibility for Biotech and Medicine Industries: A Cross-stakeholder Perspective||Authors:||Wang, Z. H.
|Keywords:||biotech and medicine industries | Data accessibility and reusability | data infrastructure | health data | health informatics | medical data||Issue Date:||2019||Journal Volume:||2019-December||Start page/Pages:||1170-1174||Source:||IEEE International Conference on Industrial Engineering and Engineering Management||Abstract:||
© 2018 IEEE. There is a dilemma between data accessibility and ethical concerns in today's biotech and medicine industry (BMI) development. (BMI). Through qualitative interviews of 14 participants as different stakeholders, this study investigates and observes actual practices and obstacles that the BMI startups would encounter while acquiring data for their own products, as well as their insights for those who are eager to change and improve the current environment.Our findings reveal an inconvenient truth that the cost of data acquisition is very high, not only in terms of monetary price but also strict regulations. Interestingly, many of the BMI startups in our interviews hope that the regulations can be more transparent and well-round, rather than relaxing the regulations.
2018 IEEE International Conference on Industrial Engineering and Engineering Management, IEEM 2018; Bangkok; Thailand; 16 December 2018 到 19 December 2018
|Appears in Collections:||圖書資訊學系|
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