2001-08-012024-05-18https://scholars.lib.ntu.edu.tw/handle/123456789/698919摘要：在社會對人類免疫缺乏病毒(HIV)感染者及後天免疫缺乏症候群(AIDS)患者（以下均簡稱患者）仍抱持歧見的情境之下，患者面臨因疾病而引發的多重壓力，其中，「告知HIV的診斷」是嚴重且一再發生的壓力源，影響患者選擇是否告知HIV的狀況，與其可能面臨的歧視及烙印有著相當大的關係，更甚者患者選擇告知或隱藏感染狀況又關鍵性的影響患者的疾病適應、自我接受、社會支持、疾病治療及傳染預防，由於國內缺乏本土性及系統性探討「告知疾病診斷之相關因素」，可能使得醫療專業人員無法提供切合患者需求的服務，因此為了能有效的協助患者適應疾病並達到預防傳染的成效，本系列性研究實為刻不容緩的研究主題。本研究計劃為期三年，第一年的研究目標為瞭解國內患者告知疾病診斷的主觀經驗及其相關因素；第二年的研究目標為發展本土性患者告知疾病診斷、烙印經驗、壓力、健康維護策略、社會支持及性行為型態量表，並探討其相關性；第三年的研究目標為發展並探討三種照護策略對患者告知、烙印經驗、壓力、健康維護策略、社會支持及性行為型態的影響，此研究成果將促進醫療專業人員對患者告知疾病診斷相關議題的瞭解，並成為醫療專業人員推展照護策略及提昇患者安全性行為<br> Abstract: People with HIV (Human Immunodeficiency Virus) or AIDS (Acquired Immunodeficiency Syndrome) confront with multiple stressors in their illness experiences. The issue of disclosure is one among them. It is both an acute and recurrent stressor. Patients’ choices of disclosure are related to their experiences of being discriminated or stigmatized. The choices affect patients’ level of illness adaptation, self-acceptance, social support, disease management and transmission prevention. It is necessary to understand issues related to patients’ disclosure in order to provide high quality care that meets patients’ needs.The proposed study is a three-year project. The research goal for the first year is to understand patients’ lived experiences of disclosure. The research goals for the second year are to develop indigenous instruments to measure patients’ disclosure, stigmatized experience, stress, preservation strategies, social support, and sexual behavioral patterns and to investigate their relationships. The research goals for the third year are to develop three caring strategies and to evaluate their impact on patients.人類免疫缺乏病毒疾病告知相關性研究HIVdisclosurecorrelation study