胡文郁Hu, Wen-Yu臺灣大學:護理學研究所李劉瀅瀅Leeliu, Ying-YingYing-YingLeeliu2010-05-052018-07-072010-05-052018-07-072009U0001-1708200914090100http://ntur.lib.ntu.edu.tw//handle/246246/180452本研究目的為探討晚期癌症病人及家屬對疾病之不確定感與希望狀態的預測因子，採立意取樣及面對面訪談的方式進行收案，於2008年9月1日至2009年3月31日在北部某醫學中心進行，共收案87位病人及125位家屬，研究工具包括基本資料表、Mishel 疾病不確定感量表及赫氏希望量表，結果發現27.6%病人完全瞭解病情，只有9.2%已預先簽署不施行心肺復甦術意願書，而4.6%預先簽署選擇安寧緩和醫療意願書，70.4%家屬完全瞭解病人的病情，有49.6%已預先簽署不施行心肺復甦術同意書，而23.2%協助預先簽署選擇安寧緩和醫療意願書，家屬在病情瞭解程度、預先簽署不施行心肺復甦術及選擇安寧緩和醫療意願書的比率較病人為高，末期醫療決策大多數仍由家屬決定。屬的希望狀態平均總分為30.61±4.50分（量表總分為10-40分，分數愈高代表希望愈高），病人職業為「工」組，比病人職業為「無」組，及家屬宗教信仰為「民間信仰或道教」組，比家屬宗教信仰為「無」組，其希望狀態分數較低；家屬的不確定感平均總分數為62.92±11.38分（量表總分為23-115分，分數愈高代表不確定感程度愈高），家屬病情瞭解程度為「非常不瞭解」組，比家屬病情瞭解程度為「完全瞭解」組、家屬「沒有預先簽署選擇安寧緩和醫療意願書」組，比家屬「有預先簽署選擇安寧緩和醫療意願書」組、家屬婚姻狀態為「未婚、離婚或喪偶」組，比家屬婚姻狀態為「已婚」組及病人「沒有接受安寧共同照護」組，比病人「有接受安寧共同照護」組，其不確定感較高。人及家屬有接受安寧共同照護者，有助於末期醫療決策之進行，及可能降低家屬之不確定感，期望此研究結果能提供醫療人員參考，協助家屬讓病人對自己的病情及醫療決策有參與的機會，依照個人自主的意願，降低家屬的不確定感，獲得更適切的醫療照顧。This research aims to discuss the predictive factors of uncertainty and hope of the patients with advanced cancer and their families. The cases were conducted in a medical center in northern Taiwan from September 9th 2008 to March 31st 2009 by purposive sampling and interviewing. 87 patients and 125 family members participated in the research. The research instruments include background data form, Mishel’s Uncertainty in Illness Scale Chinese Version and Herth Hope Index. As it turned out, 27.6% patients are fully aware of their disease, only 9.2% of them have signed the agreement of DNR, 4.6% have signed the agreement of hospice care, 70.4% family members are fully aware of the patients’ disease, 49.6% of them have signed the agreement of DNR and 23.2% have assisted signing the agreement of hospice care. This showed that the family members know more about the state of illness than the patients and are more likely to sign the agreement of DNR and hospice care. Most medical decisions at the end of life are still made by the families. he average total score of the families’ hope state is 30.61±4.50 (the total score is 10-40, a higher score means a higher level of hope.) and the hope state scores of the patient group labeled as workers and the family group labeled as Folk Religion or Taoism are all lower than their reference groups: the Unemployed and the Irreligious; the average total score of the families’ uncertainty about the disease is 62.92±11.38 (the total score is 23-115, a higher score means a higher level of uncertainty.) and the uncertainty scores of the family group labeled as Poorly Informed about the state of illness, the family group that didn’t sign the agreement of hospice care, the family group that remain single, divorced or widowed and the patient group that didn’t accept hospice shared Care are all higher than their reference ones: the fully informed, the families that signed the agreement of hospice care, the married families and the patient group that accepted hospice shared care.or those patients and their families who have accepted the hospice shared care, it will be easier to make medical decision at the end of life and possibly reduce the family’s uncertainty. This research result is expected to serve as references for medical staff; assist the families to allow the patients to know about their own disease and have equal opportunities for medical decision according to their own wishes; reduce the families’ uncertainty and get better suitable medical care for the patients.目 錄壹章 緒論………………………………………………… 1 一節 研究動機與重要性……………………………… 1二節 研究目的………………………………………… 4貳章 文獻查證…………………………………………………………… 5一節 癌症末期醫療決策……………………………… 5二節 癌末醫療模式…………………………………… 10三節 末期病人的疾病不確定感與希望狀態………… 18四節 研究架構………………………………………… 22五節 名詞定義………………………………………… 23叁章 研究方法………………………………………… 25 一節 研究設計………………………………………… 25二節 研究對象與場所………………………………… 26三節 研究工具與信效度分析………………………… 28四節 資料收集步驟…………………………………… 34五節 資料分析方法…………………………………… 35 六節 倫理考量………………………………………… 36肆章 結果…….……………………………………… 37一節 晚期癌症病人及家屬基本資料與末期醫療決策 現況……………………………………………… 37二節 晚期癌症病人及家屬之基本資料與末期醫療決 策的關係………………………………………… 38三節 晚期癌症病人的家屬之不確定感與希望狀態……43四節 晚期癌症病人與家屬之基本資料及末期醫療決 策與不確定感和希望狀態的關係……………… 44五節 晚期癌症病人的家屬不確定感和希望狀態之重 要預測因子……………………………………… 46伍章 討論…….……………………………………… 48一節 華人文化對晚期癌症病人及家屬末期醫療決策 的影響…………………………………………… 48二節 安寧共同照護對晚期癌症病人及家屬末期醫療 決策與家屬不確定感及希望狀態的影響……… 50三節 影響晚期癌症病人的家屬不確定感和希望狀態 之重要因素……………………………………… 53陸章 結論與建議……………………………………… 56一節 結論……………………………………………… 56二節 護理應用………………………………………… 58三節 限制與建議……………………………………… 60考文獻文文獻…………………………………………………… 61文文獻…………………………………………………… 64表目次2-1 研究概念架構圖………………………………… 223-1 各量表之專家效度……………………………… 303-2 疾病不確定感量表的因素負荷量結構矩陣structure matrix）與共變量………………………… 733-3 希望量表的因素負荷量結構矩陣（structure atrix）與共變量………………………………………… 753-4 各量表之信度…………………………………… 324-1 病人基本資料與末期醫療決策………………… 764-2 家屬基本資料與末期醫療決策………………… 794-3 病人基本資料與病人之末期醫療決策的關係… 814-4 病人基本資料及末期醫療決策與家屬之末期醫療 決策的關係……………………………………… 844-5 家屬基本資料與病人之末期醫療決策的關係… 884-6 家屬基本資料與家屬之末期醫療決策的關係… 904-7 家屬不確定感量表之得分與排序……………… 924-8 家屬希望量表之得分與排序…………………… 944-9 病人基本資料及末期醫療決策與家屬不確定感 及希望狀態的關係……………………………… 954-10 家屬基本資料及末期醫療決策與家屬不確定感及 希望狀態的關係………………………………… 994-11 其他變項與家屬疾病不確定感及希望狀態的相 關性……………………………………………… 1024-12 家屬希望狀態之逐步迴歸分析………………… 1034-13 家屬疾病不確定感之逐步迴歸分析…………… 104錄錄一 病人基本資料表……………………………… 105錄二 家屬基本資料表……………………………… 106錄三 病人疾病不確定感量表……………………… 107錄四 家屬疾病不確定感量表……………………… 108錄五 病人赫氏希望量表…………………………… 109錄六 家屬赫氏希望量表…………………………… 110錄七 內容效度專家名單……………………………… 111錄八 專家邀請函…………………………………… 112錄九 受試者同意書.………………………………… 116錄十 同意臨床試驗證明書…………………………… 120錄十一 研究量表使用同意書………………………… 122application/pdf762121 bytesapplication/pdfen-US晚期癌症末期醫療決策安寧共同照護疾病不確定感希望狀態Advanced CancerMedical Decision at the end of lifeHospice shared CareUncertainty in IllnessHope Status[SDGs]SDG3http://ntur.lib.ntu.edu.tw/bitstream/246246/180452/1/ntu-98-R93426024-1.pdf