2003-08-012024-05-18https://scholars.lib.ntu.edu.tw/handle/123456789/702253摘要：「烙印經驗」是人類免疫缺乏病毒（HIV）感染者及後天免疫缺乏症候群（AIDS）患者重要的疾病經驗之一，也持續的成為研究者及實務工作者關切的焦點，國內HIV/AIDS患者數日漸增加，且其牽涉多重系統的疾病特性、治療歷程的延長、患者存活率的增加，這些現象均突顯出醫療人員在長期疾病歷程中協助患者的重要性，其中對患者烙印經驗的瞭解也是十分關鍵的，因為患者感受到的烙印經驗既會強化疾病對患者造成的壓力，也間接促成患者心理、社會方面的罹病率及影響患者的生活品質及身體安適狀態，然而評估HIV/AIDS患者烙印經驗的工具發展在國外也仍在起步階段，本研究希望發展適用於本土HIV/AIDS患者，且具良好信、效度的之烙印經驗量表，以瞭解國內患者烙印經驗的層面及程度，並探討患者烙印經驗與與患者的自尊、自我掌控感及生活品質之相關性，而此研究及臨床評估工具也是未來進行縱貫性研究及治療介入性研究的必要基礎。 本研究計畫為期二年，第一年的研究目的為發展適用於本土之HIV感染者烙印經驗量表及測試烙印經驗量表的信度及效度，第二年的研究目的為探討HIV感染者烙印經驗與其個人屬性及疾病特性的相關性，並探討HIV感染者烙印<br> Abstract: Stigma experience is a pivotal illness experience of patients infected with human immunodeficiency virus (HIV) and patients with acquired immunodeficiency syndrome (AIDS). It is also a focus of concern for HIV/AIDS related researchers and practitioners. The perceived stigma experience of HIV/AIDS patients not only increases patients’ stress but also indirectly is detrimental to their psychosocial morbidity, quality of life and physical well-being. With the prospect of increasing numbers of patients, the illness nature of the multiple systems involvement, the lengthy treatment process, and the decreased morbidity and mortality due to effective pharmaceutical treatment, professionals need to be better informed about patients’ stigma experience in order to provide efficacious, compassionate, and efficient care to patients. Even with the importance of stigma experience of patients with HIV/AIDS, the development of such a measurement is still in the beginning stage. The purpose of this study is to develop a stigma instrument with good psychometric qualities in order to understand the facets and level of stigma experienced by patients infected with HIV as well as the relationship between the perceived stigma and patients’ self esteem, mastery, and quality of life. The valid measurement will be a useful research and clinical instrument for future longitudinal and interventional studies. The proposed study is two years’ study. The study’s purposes of the first year are to develop a stigma instrument of patients with HIV infection and to test its reliability and validity. The purposes of the second year study are to investigate the relationship between stigma experience and patients’ demographic characteristics and illness related factors, and the relationship between the perceived stigma and patients’ self esteem, mastery, and quality of life.HIV 感染者烙印經驗HIV infected patientstigma experience