Wang Z.-HWei Jeng2021-08-122021-08-12201921573611https://www.scopus.com/inward/record.uri?eid=2-s2.0-85061842216&doi=10.1109%2fIEEM.2018.8607609&partnerID=40&md5=da9d21b67873892a17020da9789e9edehttps://scholars.lib.ntu.edu.tw/handle/123456789/577608There is a dilemma between data accessibility and ethical concerns in today's biotech and medicine industry (BMI) development. (BMI). Through qualitative interviews of 14 participants as different stakeholders, this study investigates and observes actual practices and obstacles that the BMI startups would encounter while acquiring data for their own products, as well as their insights for those who are eager to change and improve the current environment.Our findings reveal an inconvenient truth that the cost of data acquisition is very high, not only in terms of monetary price but also strict regulations. Interestingly, many of the BMI startups in our interviews hope that the regulations can be more transparent and well-round, rather than relaxing the regulations. ? 2018 IEEE.Biotechnology; Data acquisition; Reusability; Data accessibility; Data infrastructure; Ethical concerns; Health data; Medical data; Qualitative interviews; Medical informatics[SDGs]SDG9conference paper10.1109/IEEM.2018.86076092-s2.0-85061842216