2013-01-012024-05-13https://scholars.lib.ntu.edu.tw/handle/123456789/648273摘要： 肺癌是最具侵襲及威脅生命的癌症之一，在台灣，由於肺癌的高死亡率及其疾病的進展快速，造成病患及其家屬嚴重的衝擊，目前探討對於侵襲性肺癌病人其家屬照顧者生活品質的研究仍十分有限，為了解該群病人與家屬的問題，及進一步提供以家庭為中心的介入措施來協助他們為當務之急。因此，本五年期計畫自2009年開始，於頭兩年主要為縱貫性追蹤剛診斷為侵襲性肺癌病人及其家屬，在接受診斷後最初六個月的生活品質及影響因素，第三年起則根據前兩年的研究結果，發展及測試以家庭為中心之照顧模式。本報告主要呈現第一階段之研究結果，在六個月期間病人及家屬皆僅有中等程度的生活品質，角色及社會功能皆為生活品質項目中較差的二大部分，而生理及症狀相關之生活品質則相對不錯，該結果建議醫護人員應該有更多之協助於肺癌病人罹病之初的生活安排。 本年度 (2013) 為第五年期，對侵襲性肺癌之新診斷個案及其主要照護之家屬，發展FCCC (Family-Centered Cancer Care, FCCC)照顧模式，已完成發展各12次課程的病人及家屬FCCC照顧模式、工作手冊、病人及家屬衛教單張及手冊。過去一年已完成FCCC的測試，並且目前於實驗及控制組皆已進行正式收案，實驗組研究對象須接受6個月的追蹤，在基準點的測量後，我們立即實施6個月的FCCC介入措施，目前已收案實驗及控制組各45對，預估在2013年將可收案至約150-180對病患及其家屬。 本研究無論在國內外都是第一個以侵襲性肺癌病人及家庭照顧者為研究對象的隨機分派控制介入性研究，從前驅研究的初步結果可看到研究對象對此介入措施正向反應。預期本研究結果將能幫助醫護人員，更暸解侵襲性肺癌病人與家屬再診斷六個月間之問題，及提供更有效的照護模式，以協助肺癌病患及其家屬有更好的因應能力，並增進生活品質。<br> Abstract: Lung cancer is one of the most invasive and life threatening cancers in the world. The poor disease prognosis and high mortality rate have caused the negative impacts on patients and their families. However, very limited research simultaneously focuses on both advanced lung cancer patients’ and their caregivers’ quality of life (QOL). This two-phase 5 year study (starting from 2009) aims to explore the changes of QOL in newly diagnosed advanced stage lung cancer patients and their primary caregivers. Factors related to the changes of QOL have been also examined in the first phase of the study. Close to 290 advanced lung cancer patient-family dyads were recruited from March 2009 to early 2012. The results reveal that patients reported to have moderate level of overall QOL with the relatively low levels in social function and role function. Caregiver had moderate levels of QOL across the 6 months with the lowest scores on baseline. The results suggest that health care professional should support these patients and family more in planning their life and social/role function rearrangement during the newly diagnosed stage. From 2012, we have developed and tested the Family Centered Cancer Care (FCCC). In the FCCC, we have developed 12 sessions of intervention to guide patients and family caregivers to better cope with cancer. WE have successfully recruited around 90 patient-family caregiver dyads (45 in control group, 45 in experimental group). We expect to recruit both groups up to around 75 in each groups in the 2013. We expect results of this study can become the evidence to help health professional to better understand lung cancer patients and primary caregivers’ QOl and their needs in this process. We also expect the results can become the evidence to support our future clinical interventions in helping these populations to cope with lung cancer more effectively.肺癌生活品質家屬自我效能症狀調適Lung Cancerquality of lifecaregiverself-efficacysymptomadaptation