Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease
Journal
International journal of cardiology
Journal Volume
363
Pages
30
Date Issued
2022-09-15
Author(s)
Van Bulck, Liesbet
Kovacs, Adrienne H
Goossens, Eva
Luyckx, Koen
Zaidi, Ali
Yadeta, Dejuma
Windram, Jonathan
Van De Bruaene, Alexander
Thomet, Corina
Thambo, Jean-Benoît
Taunton, Marshall
Sasikumar, Navaneetha
Sandberg, Camilla
Saidi, Arwa
Rutz, Tobias
Ortiz, Lucia
Mwita, Julius Chacha
Moon, Ju Ryoung
Menahem, Samuel
Mattsson, Eva
Mandalenakis, Zacharias
Mahadevan, Vaikom S
Lykkeberg, Birgitte
Leye, Mohamed
Leong, Ming Chern
Ladouceur, Magalie
Ladak, Laila Akbar
Kim, Yuli
Khairy, Paul
Kaneva, Anna
Johansson, Bengt
Jackson, Jamie L
Giannakoulas, George
Gabriel, Harald
Fernandes, Susan M
Enomoto, Junko
Demir, Fatma
de Hosson, Michèle
Constantine, Andrew
Coats, Louise
Christersson, Christina
Cedars, Ari
Caruana, Maryanne
Callus, Edward
Brainard, Sarah
Bouchardy, Judith
Boer, Anna
Baraona Reyes, Fernando
Areias, Maria Emília
Araujo, John Jairo
Andresen, Brith
Amedro, Pascal
Ambassa, Jean-Claude
Amaral, Fernando
Alday, Luis
Moons, Philip
Abstract
In recent years, patient-reported outcomes (PROs) have received increasing prominence in cardiovascular research and clinical care. An understanding of the variability and global experience of PROs in adults with congenital heart disease (CHD), however, is still lacking. Moreover, information on epidemiological characteristics and the frailty phenotype of older adults with CHD is minimal. The APPROACH-IS II study was established to address these knowledge gaps. This paper presents the design and methodology of APPROACH-IS II.
Subjects
Congenital heart disease; Frailty phenotype; Patient-reported outcomes
SDGs
Publisher
ELSEVIER IRELAND LTD
Type
journal article