標題: | Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease |
作者: | Van Bulck, Liesbet Kovacs, Adrienne H Goossens, Eva Luyckx, Koen Zaidi, Ali JOU-KOU WANG Yadeta, Dejuma Windram, Jonathan Van De Bruaene, Alexander Thomet, Corina Thambo, Jean-Benoît Taunton, Marshall Sasikumar, Navaneetha Sandberg, Camilla Saidi, Arwa Rutz, Tobias Ortiz, Lucia Mwita, Julius Chacha Moon, Ju Ryoung Menahem, Samuel Mattsson, Eva Mandalenakis, Zacharias Mahadevan, Vaikom S Lykkeberg, Birgitte Leye, Mohamed Leong, Ming Chern Ladouceur, Magalie Ladak, Laila Akbar Kim, Yuli Khairy, Paul Kaneva, Anna Johansson, Bengt Jackson, Jamie L Giannakoulas, George Gabriel, Harald Fernandes, Susan M Enomoto, Junko Demir, Fatma de Hosson, Michèle Constantine, Andrew Coats, Louise Christersson, Christina Cedars, Ari Caruana, Maryanne Callus, Edward Brainard, Sarah Bouchardy, Judith Boer, Anna Baraona Reyes, Fernando Areias, Maria Emília Araujo, John Jairo Andresen, Brith Amedro, Pascal Ambassa, Jean-Claude Amaral, Fernando Alday, Luis Moons, Philip |
關鍵字: | Congenital heart disease; Frailty phenotype; Patient-reported outcomes |
公開日期: | 15-九月-2022 |
出版社: | ELSEVIER IRELAND LTD |
卷: | 363 |
起(迄)頁: | 30 |
來源出版物: | International journal of cardiology |
摘要: | In recent years, patient-reported outcomes (PROs) have received increasing prominence in cardiovascular research and clinical care. An understanding of the variability and global experience of PROs in adults with congenital heart disease (CHD), however, is still lacking. Moreover, information on epidemiological characteristics and the frailty phenotype of older adults with CHD is minimal. The APPROACH-IS II study was established to address these knowledge gaps. This paper presents the design and methodology of APPROACH-IS II. |
URI: | https://scholars.lib.ntu.edu.tw/handle/123456789/627236 |
ISSN: | 0167-5273 |
DOI: | 10.1016/j.ijcard.2022.06.064 |
顯示於: | 醫學系
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