Data Accessibility for Biotech and Medicine Industries: A Cross-stakeholder Perspective
Journal
IEEE International Conference on Industrial Engineering and Engineering Management
Journal Volume
2019-December
Pages
1170-1174
Date Issued
2019
Author(s)
Wang Z.-H
Abstract
There is a dilemma between data accessibility and ethical concerns in today's biotech and medicine industry (BMI) development. (BMI). Through qualitative interviews of 14 participants as different stakeholders, this study investigates and observes actual practices and obstacles that the BMI startups would encounter while acquiring data for their own products, as well as their insights for those who are eager to change and improve the current environment.Our findings reveal an inconvenient truth that the cost of data acquisition is very high, not only in terms of monetary price but also strict regulations. Interestingly, many of the BMI startups in our interviews hope that the regulations can be more transparent and well-round, rather than relaxing the regulations. ? 2018 IEEE.
Subjects
Biotechnology; Data acquisition; Reusability; Data accessibility; Data infrastructure; Ethical concerns; Health data; Medical data; Qualitative interviews; Medical informatics
SDGs
Type
conference paper