https://scholars.lib.ntu.edu.tw/handle/123456789/577608
標題: | Data Accessibility for Biotech and Medicine Industries: A Cross-stakeholder Perspective | 作者: | Wang Z.-H Wei Jeng |
關鍵字: | Biotechnology; Data acquisition; Reusability; Data accessibility; Data infrastructure; Ethical concerns; Health data; Medical data; Qualitative interviews; Medical informatics | 公開日期: | 2019 | 卷: | 2019-December | 起(迄)頁: | 1170-1174 | 來源出版物: | IEEE International Conference on Industrial Engineering and Engineering Management | 摘要: | There is a dilemma between data accessibility and ethical concerns in today's biotech and medicine industry (BMI) development. (BMI). Through qualitative interviews of 14 participants as different stakeholders, this study investigates and observes actual practices and obstacles that the BMI startups would encounter while acquiring data for their own products, as well as their insights for those who are eager to change and improve the current environment.Our findings reveal an inconvenient truth that the cost of data acquisition is very high, not only in terms of monetary price but also strict regulations. Interestingly, many of the BMI startups in our interviews hope that the regulations can be more transparent and well-round, rather than relaxing the regulations. ? 2018 IEEE. |
URI: | https://www.scopus.com/inward/record.uri?eid=2-s2.0-85061842216&doi=10.1109%2fIEEM.2018.8607609&partnerID=40&md5=da9d21b67873892a17020da9789e9ede https://scholars.lib.ntu.edu.tw/handle/123456789/577608 |
ISSN: | 21573611 | DOI: | 10.1109/IEEM.2018.8607609 |
顯示於: | 圖書資訊學系 |
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