https://scholars.lib.ntu.edu.tw/handle/123456789/495210
標題: | Using the FOCUS family intervention for family-centered care in a premature infant with grade IV intraventricular hemorrhage | 作者: | Qiu X.-Y. Fann G.-L. HSIAO-LING YANG |
關鍵字: | Family-centered care; Grade iv intraventricular hemorrhage; Premature infant; The FOCUS program | 公開日期: | 2020 | 卷: | 67 | 期: | 1 | 起(迄)頁: | 106-112 | 來源出版物: | Journal of Nursing | 摘要: | Preterm infants face increased rates of mortality and developmental complications, which are a burden on children’s parents (and caregivers), who suffer from exhaustion and situational uncertainty. This case focused on an extremely-low-birth-weight (908 gm) premature infant with initial unstable vital signs complicated by a grade 4 intraventricular hemorrhage (IVH) that led to partial brain atrophy and enlarged brain ventricles. A poor neurological outcome was expected due to the high risk of cerebral palsy and impaired cognitive abilities. Long-term healthcare for this critical infant was causing tremendous physical, emotional, and financial strains on the family. The parents suffered from worries over the poor prognosis, resulting in stress, sleep disorders, and relationship difficulties with the healthcare professionals. Considering the poor prognosis of the infant, the parents faced a medical dilemma between choosing aggressive treatment and withdrawal of treatment, which led to stress and sleep disorders. Differences between the parents and health professionals regarding disease severity perception and treatment opinions further strained their mutual relationship. To ameliorate this issue, the author implemented family-centered care (the FOCUS family intervention) to help the patient and his family. This intervention is designed to increase family involvement, foster an optimistic attitude and effective stress coping techniques, and reduce uncertainty and negative emotions. For the patient, we provided symptom-relief management to improve abnormal muscle tone and development delay. Our intervention ameliorated the negative emotions, insomnia symptoms, and imbalanced family relationships and improved the life quality of the caregivers. Furthermore, the intervention enhanced the patient’s autoregulatory ability, and both physical and neurological development. This case study is expected to provide experience in critical care for premature infants with a poor prognosis and their family using a FOCUS family intervention as well as to improve the quality of healthcare delivery in intensive clinical settings. ? 2020, Taiwan Nurses Association. All rights reserved. |
URI: | https://scholars.lib.ntu.edu.tw/handle/123456789/495210 | ISSN: | 0047-262X | DOI: | 10.6224/JN.202002_67(1).13 | SDG/關鍵字: | brain hemorrhage; extremely low birth weight; family; human; human relation; newborn; pathology; prematurity; psychology; Cerebral Hemorrhage; Family; Humans; Infant, Extremely Low Birth Weight; Infant, Newborn; Infant, Premature; Infant, Premature, Diseases; Professional-Family Relations |
顯示於: | 護理學系所 |
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