Adult congenital heart disease nurse coordination: Essential skills and role in optimizing team-based care a position statement from the International Society for Adult Congenital Heart Disease (ISACHD)
Journal
International Journal of Cardiology
Journal Volume
229
Pages
125-131
Date Issued
2017
Author(s)
Sillman C.
Morin J.
Thomet C.
Barber D.
Mizuno Y.
Malpas T.
Flocco S.F.
Finlay C.
Chen C.-W.
Balon Y.
Fernandes S.M.
Abstract
Background Founded in 1992, the International Society for Adult Congenital Heart Disease (ISACHD) is the leading global organization of professionals dedicated to pursuing excellence in the care of adults with congenital heart disease (CHD) worldwide. Among ISACHD's objectives is to “promote a holistic team-based approach to the care of the adult with CHD that is comprehensive, patient-centered, and interdisciplinary” (http://www.isachd.org). This emphasis on team-based care reflects the fact that adults with CHD constitute a heterogeneous population with a wide spectrum of disease complexity, frequent association with other organ involvement, and varied co-morbidities and psychosocial issues. Methods Recognizing the vital role of the adult CHD (ACHD) nurse coordinator (ACHD-NC) in optimizing team-based care, ISACHD established a task force to elucidate and provide guidance on the roles and responsibilities of the ACHD-NC. Acknowledging that nursing roles can vary widely from region to region based on factors such as credentials, scopes of practice, regulations, and local culture and tradition, an international panel was assembled with experts from North America, Europe, East Asia, and Oceania. The writing committee was tasked with reviewing key aspects of the ACHD-NC's role in team-based ACHD care. Results/conclusion The resulting ISACHD position statement addresses the ACHD-NC's role and skills required in organizing, coordinating, and facilitating the care of adults with CHD, holistic assessment of the ACHD patient, patient education and counseling, and support for self-care management and self-advocacy. ? 2016
Subjects
Adult congenital heart disease; Grown-up congenital heart disease; Nurse coordination; Position statement; Team-based approach
SDGs
Other Subjects
anticoagulant agent; heparin; Article; colonoscopy; congenital heart disease; contraception; coordination; counseling; dyspnea; East Asian; Europe; family planning; health care cost; health care organization; human; international normalized ratio; International Society for Adult Congenital Heart Disease; lifestyle; medical expert; North America; nurse; nursing competence; Pacific islands; patient advocacy; patient care; patient education; pregnancy; primary medical care; priority journal; quality of life; self care; social support; adult; advisory committee; clinical competence; health care delivery; Heart Defects, Congenital; nurse attitude; nursing; practice guideline; standards; Adult; Advisory Committees; Clinical Competence; Delivery of Health Care; Heart Defects, Congenital; Humans; Nurse's Role; Patient Advocacy; Patient Care Team; Practice Guidelines as Topic; Self Care
Type
journal article